Wednesday, November 30, 2011

Let's Rai$e the Roof This Holiday Season!

Two Door Cinema Club, Something Good Can Work
Tourist History 2010

You gotta step up your game to make to the top.
So go!
Gotta little competition now.

Tis the season to be jolly, tra la la la la, la la la la. Do you know what would make me jolly? If you joined in the MKF holiday giving drive by hosting your own bake sale or donating online! Check out the MKF Holiday Drive page, read what each mAss kickin' fundraiser has to say, watch their videos, and pick a member's page to support!

Last winter I held the first ever MKF bake sale at my high school. Hungry high school students loved the homemade cookies, brownies, and red velvet cupcakes - the bake sale was a huge success. The support from students was so overwhelming that we sold out in less than seven minutes! This year I’m hoping to double our profits, with the incentive of TUMORS SUCK! stickers for every purchase or donation of $5 or more. The bake sale will take place on December 9th, so stay tuned for pictures, videos, and other updates regarding fundraising progress!

Although I have a feeling that the majority of my fundraising this winter will come from my bake sale, I would love to have some support from everyone else out there. The more, the merrier! Bake sales are easy to arrange, and you can always save some of the goodies that you bake to eat for yourself. Check back in on here or on my fundraising page in two weeks for an update!

Thursday, November 17, 2011

The Island of Misfit Mos 2011

In honor of Movember, a crack commando unit was formed when they each were separately affected by a tumor mass that they were not willing to accept. In 2010, these men promptly joined forces to combat these horrible diseases. Today, they survive as soldiers of fortune. If you have a problem, if no one else can help, and if you can find them, maybe you can hire... The Island of Misfit Mos. (Cue the A-team theme song...)

JOIN US! ADD YOUR PICTURES ON THE WALL OF THE FACEBOOK GROUP! WE HAVE MEMBERS OF VARIOUS CANCER ORGANIZATIONS REPRESENTED ON THE ISLAND WITH A COMMON PURPOSE TO FIGHT ALL TUMORS AND CANCER... IS YOUR ORGANIZATION REPRESENTED?

Tuesday, November 15, 2011

Sunday, November 13, 2011

Seen Through My Eyes: Reflections on the YAA Conference

From the moment our plane touched down in Austin, Texas, I experienced a busy and meaningful time of connection with the Young Adult Alliance (YAA)! I observed and participated in this conference with unique eyes as I live in Calgary (Alberta, Canada) with my (Canadian) husband, Mike; am a supporter to him and the other young adult cancer survivors I’ve met; and am also an advocate for young adult cancer awareness. Although it sounds cliché to say it, both my husband and I were very honored to attend this annual meeting and hit the ground running with new-to-us faces, organizations, and a fervent zeal that was refreshing to engage in with others.

After a long day of traveling from Ottawa but a beautiful last flight, we arrived at the Omni Hotel in downtown Austin for the event. I did what any self-respecting traveler would do after a long day: tried out the bed!

It was nice, let me assure you.

After exploring the hotel we decided to grab a late-night dinner, chatting with a few people around the hotel but mainly getting excited about the event officially beginning soon.

Our initial impression of Austin was that it was a fun, thriving, “young” city, and the Omni Hotel left a similarly positive impression on us both as we enjoyed some food (fresh fish tacos! When in Rome…) and hit the hay for a full upcoming day. Wednesday began, after a short morning workout in their spacious gym, with our favorite meal of the day downstairs: breakfast! I’m always on the lookout for accommodations with healthy breakfast foods, and the Omni Hotel did not disappoint! I was thrilled to see steel cut oatmeal, fresh fruit options, strong coffee, my favorite nut butters, and even fage yogurt alongside the hot options like omelettes, waffles, and French toast. A healthy, delicious breakfast makes for one happy supporter!

Speaking of options, throughout the conference I was very pleased with the amount of optional breakout sessions that have were available to attendees to choose from and attend. Not wanting to miss any opportunity for learning and new information, my husband and I went to “How to Speak to the Media” by Jen Mills, Emily Peterson, and Amy Berry. It was jam-packed with information about public relations, including very practical “how to” moments with the opportunity to write down your own strengths, weakness, opportunities, and threats as a company or individual. It also highlighted the elbow work that has to go into solid PRC for a company – it’s labor intensive, requires hard work, and thrives best off of building into relationships with the media around you. This was extremely helpful for my husband with his new job at the Tom Baker Cancer Center in Calgary as well as for me personally as I begin to re-establish my job as a mobile personal trainer. I especially liked how engaging the session was, cancer or not, because it was practical and gave me tools to walk away with as I left.

The second session we attended and loved was entitled, “R2iSMASH: Tapping the Social Web to Reach Potential Members and Donors.” This session, run by Brock Yetso, Craig Lustig, Chris Chodnicki, and Samantha DeVita, was also full of relevant information because in the new field of young adult cancer, learning how to engage with and utilize social media goes a long way. Those affected directly (young adult survivors) are plugged into sites such as YouTube, Facebook, and Twitter, and knowing not only how to work those sites but how to engage in and build a community using those sites is extremely beneficial. Some key points to share that benefit everyone using social media:

1.) Get your house in order. In other words, perform a social media “audit” on yourself or your company in order to know how much of an influencer you are and whether or not you are truly engaging with your followers. (Helpful tools include Google Analytics, Hootsuite for Twitter, Facebook Insights, Klout, YouTube Insights, and Radian 6.)

2.) Publish audience-centered content that’s relevant. If the information isn’t applicable, then it doesn’t really matter! We all want to be spreading news as advocates, but we have to make sure what we’re spreading is information that those in the community want to hear. And lastly,

3.) Engage members and build relationships with influencers and brand advocates. Although the workshop was set up with a company’s social impact in mind, the information can certainly be brought to a personal level too as most of us today are using many, if not all, of the social media platforms out there. The truth is that if we are pumping information out, updating pages, and happy with the number of “likes” or “retweets” we’re seeing, if we’re not intentionally engaging with the social communities we’re helping to create then no true change is going to come from it. Those relationships must be maintained throughout the year and grown so they can take off on their own, member to member.

I was also reminded that it’s important to use each resource to its fullest advantage. For example, Twitter might be a great place to repost fast-acting, timely news targeted toward your demographic, while Facebook might work better for people posting photos and engaging with community events through your page. At the same time, a website or blog might lump them all together while streaming videos through YouTube is probably the most effective place to post film.

There was so much to take in, and as both a supporter and an advocate I got a lot out of the sessions because cancer or not, they related to me personally. I was also encouraged to see the positive benefits of what being intentional with technology can bring and reminded of how we can really use it to affect greater change than we perhaps ever could have before.

The power of social media: “Movember” in action.

From large group sessions to breakout workshops, from strolling the streets with new friends to networking over drinks, I learned so much throughout this conference and am so thankful we were able to interact with this thriving, passionate community in the United States. It’s a reminder to me of why Mike and I do what we do – why we choose to be involved and how we can be more effective in our involvement. I savored every bite, appreciated every moment, and enjoyed each experience and left with a sense of renewed vision and purpose in my role as a supporter and fellow advocate.

Learning, living, and growing,

Bonnie

Sunday, October 30, 2011

International TUMORS SUCK! Day 2011


Counting all different ideas drifting away
Past and present they don’t matter
Now the future’s sorted out
Watch her moving in elliptical patterns
Think it’s not what you say
What you say is way too complicated
For a minute thought I couldn’t tell how to fall out

Phoenix, 1901, Wolfgang Amadeus Phoenix 2009


I tried to do my part in celebrating and spreading awareness about International TUMORS SUCK! Day on October 25th by passing out stickers to friends and faculty at my high school. Last year most of the teachers declined the opportunity to wear a sticker and support the mAss kickers of the world, probably because they disliked the use of the word “suck.” But, this year I think that the teachers recognized the fighting message within the campaign, and they came up to me and other students asking where they could get stickers! It was nice to see such a wave of support from my school – people had fun taking pictures with the stickers and some have kept the stickers on their blazers, covering my high school's official seal haha. Most high school students don’t have to stop and spend time to think about how tumors/cancer affects their lives or others; I choose to, and am lucky to be surrounded with such supportive friends and family members who agree that TUMORS SUCK! I have a pretty cool plan for a photo next year, but it’ll take about 40 people to pull off what I have in mind..stay tuned!

Tuesday, October 11, 2011

What is Hawktober? By Matt Cotcher

Hawktober is a brand new organization that shows some attitude while raising brain tumor awareness: Hawktober was officially formed in 2011 and features supporters wearing Mohawks every October to bring more attention to brain tumors, those diagnosed with them, and survivors.

I like to say that supporters ‘Rock da’ Hawk’, because it conveys the spirit necessary to combat such an intimidating diagnosis. Patients, survivors, family and friends are showing off Hawks in support of the movement. In our first week, Hawktober has rallied support from coast to coast and even in Australia!

Hawktober was founded by a pair of guys that have taken survivorship to a whole new level – one they like to call ‘thrivership’. Certainly we understand the importance of raising awareness; after all, my diagnosis came as a complete surprise. It required such quick action that learning about the tumor, surgery or recovery wasn’t a viable option.

One of Hawktober’s goals is to give people what is often lacking in the drama of a life-altering diagnosis – more information and a better understanding of treatment options. With all the technology and information available, Hawktober will help folks that find themselves in similar situations be better prepared.

HISTORY

One of our co-founders, Eric Galvez, has been passionate about raising brain tumor awareness since his diagnosis in 2005. In an ironic twist, Eric went from being a physical therapist to having his coworkers provide him with therapy after undergoing surgery and radiation.

After rehab, Galvez started the Tumors Suck campaign and subsequently mAss Kickers Foundation. Then one of his friends, Al Chan, suggested the idea of rockin’ hawks to promote brain tumor awareness. I met Galvez online in 2007 while researching survivorship. Then, earlier this year, Galvez shared the Hawktober backstory with me and encouraged me to run with the idea. And just like that, Hawktober is rockin’ da Hawk around the globe!

THE 2011 CAMPAIGN

At the time of this writing, "Hawktober 8th", we’re only one week into this year’s effort. Between a rapidly growing Facebook page and an interactive website, it’s been a fun week of collecting photos of supporters Rockin’ da Hawk!

The organization is based in Austin, TX where Floyd’s 99 barbershops is supporting the effort. Each week in Hawktober, Floyd’s is featuring “Mohawk Monday” where supporters receive free Mohawks.

Beyond Austin, there are already supporters from Massachusetts to California clipping, shaving and styling their way to support family, friends and themselves in the spirit of Hawktober.

THE FUTURE OF HAWKTOBER

While I’m encouraged and overwhelmed by the amount of support Hawktober has received, I recognize we’re just getting started! Certainly, mohawks are attention-grabbers and we plan to use that to our advantage as we work to promote our goals and awareness.

Beyond fun pictures of supporters that Rock da’ Hawk, I’m always open to exploring partnerships with other related organizations. Awareness, whether it’s of brain tumors or breast cancer, is a responsibility that we all share, and Hawktober is always happy to help in the job.

In addition to promoting awareness and our patient support efforts, once we attain our 501(c)(3) status, we will target partners that research causes of brain tumors. I firmly believe that we need to direct our efforts towards finding causes in order to help find cures. With the variability (tumor type and location) of brain tumors, every ounce of support is needed and appreciated!

Matt Cotcher

Co-Founder, Hawktober

Thriving since 2007

Thursday, September 29, 2011

[Guest Post] Fighting Cancer With Physical Fitness

By: David Haas


Most people are aware of the health benefits of physical activity. Exercise controls weight, fights disease, improves mood, boosts energy, promotes sleep, sparks sex life, and is often just plain fun. Despite all this, exercise -- even going for a short walk -- is usually the last thing someone with cancer wants to do, whether they have a common and very treatable cancer like skin cancer or a rare disease like mesothelioma exercise can help.

Coping with an initial cancer diagnosis -- followed by the harsh treatment of surgery, radiation, or chemotherapy -- can destroy a person’s sense of control. The physical, psychological, and emotional barriers of cancer can overwhelm patients. Cancer fitness programs aim to break the barriers for cancer survivors, giving them back a sense of control. And the research on fitness for cancer survivors is promising.

Current Research

One Canadian organization, the Alberta Heritage Foundation For Medical Research (AHFMR) has funded research on the effects of exercise on cancer survivors. Led by Dr. Nicole Culos-Reed, the study centers on patients who have completed their last cancer treatment but remain on long-term hormone therapy.

Culos-Reed’s study, which examines patients with breast and prostate cancers, focuses on the relationship between exercise and emotional factors like stress, depression, and personal control, as well as physical factors like bone density. The primary goal is to change the cancer survivors’ lifestyle and improve their quality of life.

Past Research

According to the National Cancer Institute (NCI), an agency of the United States Department of Health and Human Services (HHS), extensive studies have been conducted on the relationship between exercise and various types of cancer. Colorectal, breast, endometrial, lung, and prostate cancers are just a few examples. The research suggests that exercise has a protective effect, reducing the risk of certain cancer types. Physical activity has also been shown to positively affect metabolism, inflammation, immunity, and other factors. Generally speaking, exercise enhances a patient’s sense of overall health and well-being and improves quality of life.

Fitness Benefits

Exercise offers many of the same benefits for cancer patients as for the general population. And it does not matter whether someone is facing highly treatable skin cancer or mid-stage mesothelioma treatment. Mild or moderate activity is possible for just about anyone, and it can help patients better cope with treatment or after-care.

Along with weight and diet, physical activity is a key component of energy balance. It can greatly influence a cancer patient’s ability to fight the disease and treatment side effects. Doctor-approved fitness activities, from cancer treatment center programs to personal exercise plans, can go a long way in giving them back a sense of control and well-being.

Are you Ready to be a mAss Kicker?

We think ALL Tumors Suck! We believe a stronger community needs to be formed to more efficiently fight these diseases. JOIN THE MASS KICKERS ARMY! Content here will be provided by real people who have been affected by tumors/cancer. Any one can be a "mAss Kicker". When facing a new intimidating diagnosis it is easy to loose confidence. We've found that the "Right ATTITUDE" will help get you through a difficult time! Are you ready to be a "mAss Kicker?"